{"id":7782,"date":"2020-11-20T17:18:22","date_gmt":"2020-11-20T20:18:22","guid":{"rendered":"https:\/\/www.casadocuidar.org.br\/?page_id=7782"},"modified":"2021-02-26T14:48:48","modified_gmt":"2021-02-26T17:48:48","slug":"palliative-care","status":"publish","type":"page","link":"https:\/\/www.casadocuidar.org.br\/en\/palliative-care\/","title":{"rendered":"Palliative Care"},"content":{"rendered":"

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O que \u00e9 e o que n\u00e3o \u00e9 Cuidado Paliativo<\/h3>\n

1. Cuidado paliativo \u00e9 um tratamento multiprofissional, uma abordagem de cuidados que visa a melhoria da qualidade de vida de pessoas com doen\u00e7as graves. Disso resulta que n\u00e3o existem pacientes paliativos, assim como n\u00e3o existem pacientes di\u00e1lises, ou mesmo pacientes quimioterapias. Cuidado Paliativo, di\u00e1lise ou quimioterapia s\u00e3o tratamentos, e n\u00e3o diagn\u00f3sticos. Todos os pacientes com doen\u00e7as graves podem se beneficiar dessa abordagem de cuidados. Pacientes com doen\u00e7as card\u00edacas, oncol\u00f3gicas, pulmonares, neurol\u00f3gicas, AIDS, diabetes, s\u00edndromes das mais diversas e outras condi\u00e7\u00f5es m\u00e9dicas podem se beneficiar desse tratamento, estejam ou n\u00e3o lidando com o fim de suas vidas.<\/p>\n

2. Cuidado Paliativo n\u00e3o \u00e9 um diagn\u00f3stico m\u00e9dico, nem uma fase da doen\u00e7a, mas uma abordagem de cuidados, e portanto um tratamento, o que inclui uma s\u00e9rie de medidas espec\u00edficas, um conjunto de dimens\u00f5es a serem precisamente avaliadas e um conjunto de a\u00e7\u00f5es a serem implementadas, por vezes bastante complexas, se considerarmos algumas condi\u00e7\u00f5es igualmente complexas. Disso tudo resulta que uma pessoa pode ter uma doen\u00e7a absolutamente avan\u00e7ada, incur\u00e1vel, grav\u00edssima, e ainda assim n\u00e3o estar recebendo nenhum Cuidado Paliativo. Cuidado Paliativo pode ser oferecido inclusive no curso do tratamento curativo de uma doen\u00e7a potencialmente cur\u00e1vel, e auxiliar o paciente e sua fam\u00edlia a terem seus sofrimentos administrados e cuidados por uma equipe multiprofissional, mesmo que o desfecho dessa hist\u00f3ria seja a cura.<\/p>\n

3. Cuidado Paliativo n\u00e3o \u00e9 uma poss\u00edvel \u00faltima alternativa para a vida de algu\u00e9m, e n\u00e3o significa morte certa. Cuidado Paliativo n\u00e3o significa retirar tratamentos m\u00e9dicos, nem negar \u00e0s pessoas o melhor que a medicina e as demais ci\u00eancias da sa\u00fade podem lhe oferecer, mas ajudar a pensar em tratamentos hierarquizados e proporcionais entre os benef\u00edcios a ser buscados e os malef\u00edcios a serem evitados em cada fase da doen\u00e7a.<\/p>\n

4. Cuidado Paliativo n\u00e3o \u00e9 um conjunto de t\u00e9cnicas e procedimentos exclusivos de uma \u00fanica categoria profissional, e portanto envolvem v\u00e1rios atores no cen\u00e1rio das ci\u00eancias da sa\u00fade e da vida. Cuidado Paliativo de qualidade se faz em equipe multiprofissional, com profissionais treinados na filosofia e na boa pr\u00e1tica da palia\u00e7\u00e3o.<\/p>\n

5. Cuidado Paliativo n\u00e3o deve ser entendido como algo para as pessoas ricas, mas um direito humano como outro qualquer, j\u00e1 que todos devem ter acesso a al\u00edvio para os sofrimentos (por vezes muito intensos) gerados por graves condi\u00e7\u00f5es de sa\u00fade. Cuidado Paliativo significa busca para uma vida digna e de melhor qualidade, mesmo diante do fim da vida. Cuidado Paliativo \u00e9 um exerc\u00edcio de cidadania.<\/p>\n

\n

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Frequent questions about Palliative Care<\/h2>\n

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1. What are Palliative Care?<\/span><\/h3>\n

A multidimensional care (in the physical, emotional, family, social and spiritual dimensions) developed and offered by qualified professionals working as a team to provide care for a person suffering with a disease that threatens the continuity of life. Palliative care can be offered from the time of diagnosis until the moment of death, completing with the mourning support offered to family and friends. In this work, all diagnostic and therapeutic resources available are used as a broad support to the quality of life of the patient and family so that they can live this difficult moment with comfort, value and meaning. All the work developed by the team aims to relieve and prevent suffering involved in the evolution of illness, which includes looking at the process of dying and saying goodbye as well as living life to the fullest. A work and wisdom that complement each other so that the patient feels he\/she matters until the end.<\/span><\/p>\n

Article by Ana Claudia Quintana Arantes<\/em><\/p>\n

According to the World Health Organization, Palliative Care is the comprehensive care offered to patients and family members when faced with a serious illness that threatens the continuity of life. The aim of Palliative Care is to offer effective treatment for the symptoms of discomfort that can accompany the patient, whether caused by the disease or the treatment. (WHO, 2017)<\/span><\/p>\n

 <\/p>\n

2. Who is the patient who benefits from Palliative Care<\/span>?<\/h3>\n

All patients who have serious diseases that threaten the continuity of life and experience symptoms of suffering benefit from the assistance of a Palliative Care team. AS mentioned above, this type of care can be offered from the diagnosis of the disease, through all treatments that seek a cure or disease control, as well as the care intensely needed in human finitude. All diseases with this severity profile fit here, not just cancer!<\/span><\/p>\n

 <\/p>\n

3. How does Palliative Care work<\/span>?<\/h3>\n

Palliative Care acts on the needs of the patient and his family, committing to assess and treat physical symptoms of discomfort, such as pain, fatigue, tiredness, shortness of breath and others that can cause suffering and worsen the quality of life. While treating the symptoms of the physical dimension, it is oriented towards assessing and caring for the emotional, social, family and spiritual needs of the patient and his family, respecting their values <\/span>\u200b\u200b<\/span>and beliefs.<\/span><\/p>\n

In the case of Comprehensive Care, we must always count on a team of health professionals who are trained and qualified in treating symptoms of discomfort related to the dimensions of the human being, which are described as: physical, emotional, social, family and spiritual.<\/span><\/p>\n

The professionals that make up the team are those who control the symptoms of the body – physical dimension – (all health professionals can help with this control!), Of the mind – emotional dimension – (psychologist, psychotherapist, psychoanalyst, psychiatrist), of the spirit – spiritual dimension – (priest, pastor, rabbi, guru, priests of different religious beliefs professed by patients) and the social and family dimension (social worker, volunteer, psychologist).<\/span><\/p>\n

The curative and palliative treatments are complementary to each other, because with a better control of symptoms the patient and his family can go through the time of curative treatments more effectively, even if these treatments are more aggressive. What happens in general is that as the disease progresses, there is a greater need for palliative care; it is possible that, at some point in the evolution of the underlying disease, the priority of care aims exclusively at comfort and quality of life.<\/span><\/p>\n

 <\/p>\n

The principles of palliative care are<\/span>:<\/strong><\/p>\n

    \n
  1. \n

    Respect the dignity and autonomy of patients.<\/span><\/p>\n<\/li>\n

  2. \n

    Honor the patient’s right to choose between treatments, including those that may or may not prolong life.<\/span><\/p>\n<\/li>\n

  3. \n

    Communicate clearly and carefully with patients, their families and their caregivers.<\/span><\/p>\n<\/li>\n

  4. \n

    Identify the main objectives of health care from the patient’s point of view.<\/span><\/p>\n<\/li>\n

  5. \n

    Provide impeccable control of pain and other symptoms of physical suffering.<\/span><\/p>\n<\/li>\n

  6. \n

    Recognize, evaluate, discuss and offer access to services for psychological, social and spiritual issues.<\/span><\/p>\n<\/li>\n

  7. \n

    Provide access to therapeutic support, covering the spectrum of life through end-of-life treatments that provide an improvement in the quality of life perceived by the patient, his family and his caregivers.<\/span><\/p>\n<\/li>\n

  8. \n

    Organize care in order to promote the continuity of care offered to the patient and his family, whether this care is performed in the hospital, in the office, at home or in another health institution.<\/span><\/p>\n<\/li>\n

  9. \n

    Maintain an attitude of educational support to all those involved in direct patient care.<\/span><\/p>\n<\/li>\n<\/ol>\n

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